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Steering Committee

We are grateful to have the opportunity to work with so many PAG leaders, innovators, and subject matter experts.

Headshot of Amanda Johnson

Amanda Johnson

Executive Director, ARRE Foundation

Headshot of Brooke Babineau

Brooke Babineau

Scientific Director, KCNQ2 Cure Alliance

 

 

headshot of Charlene Son Rigby

Charlene Son Rigby

headshot of simon rogers

Simon Rogers

Founder & CEO, A Little Better Company

 

headshot of Keith McArthur

Keith McArthur

Executive Director, CureGRIN Foundation

headshot of Lisa Manaster

Lisa Manaster

Co-Founder & President, CACNA1A Foundation

headshot of Nuala Summerfield

Nuala Summerfield

headshot of Scott Demarast

Scott Demarest, MD

Pediatric Neurologist, Children's Colorado

headshot of Shayanne Martin

Shayanne Martin

Co-Founder & Executive Director, Channeling Hope Foundation

 

 

headshot of veronica hood

Veronica Hood, PhD

Chief Scientific Officer, Dravet Syndrome Foundation

Headshot of Amanda Luddeke

Amanda Luddeke

headshot of Diane Linnehan

Diane Linnehan

headshot of John Schreiber, man with bowtie

John Schreiber, MD

Associate Chief, Neurophysiology, Children's National

headshot of Karen Utley, an incredible caregiver and powerful advocate

Karen Utley

headshot of madison bell

Madison Berl, PhD

Pediatric Neuropsychologist, Children's National

headshot of Cynthia Salorio

Cynthia Salorio

Clinical Neuropsychologist & Co-Director of Neuropsychology, Kennedy Krieger Institute

headshot of scotty sims

Scotty Sims

Executive Director, KCNQ2 Cure Alliance

headshot of steve hille

Steve Hille

Chief Executive Officer - Australia, FOXG1 Research Foundation

headshot of Brian Pfister

Bryan Pfister, PhD

Senior Director, Pharvaris

headshot of Caitlin Grzeskowiak

Caitlin Grzeskowiak, PhD

Chief Research and Innovation Officer, Epilepsy Foundation

headshot of Dylan Ritter

Dylan Ritter, PhD

Science Director, Dup15q Alliance

 

headshot of Juliane Mills, a smart, sharp woman

Juliane Mills

headshot of Leah schust Myers, a force to be reckoned with

Leah Schust Myers

Executive Director, FamilieSCN2A Foundation

headshot of Megan Abbott

Megan Abbott, MD

Pediatric Neurologist, Children's Colorado

headshot of Sarah Drislane, the woman to call when you need to get something done

Sarah Drislane

Founder & Executive Director, KCNT1 Epilepsy Foundation

headshot of Shira Johnson

Shira Johnson

Executive Director, CACNA1A Foundation

headshot of Jeremy Tanner

Jeremy Tanner, MD

Assistant Professor of Neurology, Biggs Institute, UT Health San Antonio